Blog
Sadly our Daughter had Died of SMA Type 1 at Helen and Douglas House Hospice.
Verity and I are sorry to inform you that our beautiful daughter Marianne Wendy Jane West died on Saturday 28th September at 7.20am in Helen & Douglas House Marianne was 13 weeks old that day.She passed away very peacefully cuddled in our arms, which we are eternally grateful for.Verity and I are absolutely devastated but also incredibly relieved that she is no longer struggling for breath.Although she was very poorly for most of her little life, she smiled every single day and we had some a
…
8th Oct 2019
SADLY OUR DAUGHTER IS TERMINALLY ILL. Mainly business as usual.
Please forgive the generic nature of this message. We are sorry to let you know that Marianne, our Daughter of 7 weeks, has been diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a progressive life-limiting condition. Unfortunately she is unlikely to be with us for very much longer.Mainly business will be as usual, we will priorities shipping orders over emails, calls and social media etc.. We may in fact not be able to reply to all communications during this difficult time.We have started a
…
27th Aug 2019